Good news! Miabelle got her first immunizations without breaking a sweat. Mama, los abuelos, mamie bo and papa were on heightened alert fearing fevers but Miabelle just said "No biggy silly peeps...I big girl". No fevers! Her muscles did stiffen up because the immunizations were injected into her legs. So for about a day and a half she couldn't walk. But no worries all Miabelle needed to do was scream "abuela... up!! up!!" and abuela came to the rescue like a white knight to carry Miabelle around. Now, Miabelle is just all peachy and running around screaming "abuela... up! up!". Immunization stage 1 has passed with no side effects.
More good news, Miabelle is back on her growth curve that was established when she was born. Every child gets measured during their first years and a developmental curve gets calculated to see if the child is within the "normal"(Whatever that means). Well, despite the steroids, the many medications and many surgeries, Miabelle who was very much below her curve for months is now back onto her developmental curve and within the "norms" of healthy toddlers. It felt so good to hear that she caught up so fast. I cannot tell you how proud we all are. Her physical movement (running and jumping) remains slightly diminished because of the steroids as well as the long bed rest she had. Noelie runs and jumps but Miabelle can only slowly run and certainly not jump, her legs' muscles remain slightly stiff making it slightly difficult to be as flexible as her sister. Therefore the doctor advised to reactivate the physical therapy for Miabelle, which we welcome because it will make a big difference going forward. The olympics are only a few years away and we need to get her in shape so she can compete with Noelie in Olympics 2016 as United Puerto Belgians.
As to our super Noelie, Noelie went also to the doctors for a quick check-up. No shots for her but man does she hate doctors or what. In order to get her to the scale and have her length measured I needed to bring out my best WWWF moves (WWWF=World Wide Wrestling Federation). Just to give you an image: I head locked her but that didn't work, I put her hands on her chest holding her down while sitting on her but she is way better wrestler than me, I held her upside down with her legs up... then I threw her in the air ...smacked her down on the table... jumped on top of her locking her arms and legs while the nurse quickly measured her length and her head. Once the referee called it, I got off of her and hell broke lose... clearly Noelie does not know the rules of WWWF cause papa got a smacking. So now that I did my imaginary dramatization, the true facts are: Noelie doesn't like doctors... she hates them with a passion, she fought hard but got overpowered by the nurse and while I held her down the nurse measured her up and down. I am glad to say "she survived!" and she is an inch larger than last month. Super Noelie has some amazing strength for a little girl, it took me all my strength and the nurse to keep her down. Olympics in wrestling here she comes!!!!!
What was rather emotional of the doctor's visit was when the doctors, who contributed in saving Miabelle's life when the initial infection occurred in January 2011, came to see her. They were all in such amazement and one of the doctors even said "After reading up on HLH I feared we would never see her again, she is a little miracle". I am a man and thus we do not cry... but man did I have to swallow a couple of times and puff up my chest to control the emotions.
It has been a lot of fun in the past weeks. The girls enjoyed so much being in PA with los abuelos and seeing their cousins. They have never played this much in there lives and... man... are they spoiled with all the attention, and good cooking, and playing, you name it they got it. Once we move back into our new cocoon, reality will strike them that spoiling is not the way of life and they will most likely stage a coup d'etat on mama and papa. But we, the parental dictators that we are, are prepared.
Last weekend, the church of los abuelos organized a Thanksgiving Mass in honor of Miabelle. Many of the people who attended have been strong supporters of Miabelle's fight and it was very nice to meet some of them. The mass was heartwarming and encouraging. The priest said some very kind words but some of what he said struck home. Miabelle is like other HLH/FLH children true miracles; with the odds stacked against them they seek to prevail and fight to the bitter end. He also said that in life you cannot just sit and wait for things to happen, you have get up and seek them so that you stack the odds in your favor. Even then things can go wrong, but at least you tried and did what you could. Couldn't agree more: for the optimist to conquer all, the optimist doesn't sit, complain and wait. On the contrary, he/she works hard to create the chance needed. Sometimes that chance helps like that single donor did for Miabelle and sometimes it doesn't. But when it doesn't at least you can have the piece of mind that you tried. We truly enjoyed the mass and look forward meeting all her supporters gain soon.
We also have not posted anything yet on the family party los abuelos organized on our return. Small misscommunication between mama (who is wrong) and papa (who is right this one time). No worries, it will be posted soon with pictures!!
So long story short, all is well with them todds these days. This weekend we are moving in our new cocoon!!
Sleepy sleep as the weekend will not be easy.